Monday, September 22, 2008

"We remain ever thankful to a Loving God" !!!!

WOW! "Biggest End of Chemo Party" indeed. Thank you to our new friends, the Millers for including us in this awesome event. Justin Miller was diagnosed with Neuroblastoma two years ago this week. After 15 months of being cancer free, Justin presented with a brain tumor and is currently in treatment again. He is a gorgeous child, a true survivor and just oozes life. Please pray for this special kiddo and his family. We look forward to getting to know them all better. We also had a chance to meet the infamous, and might I add adorable, Hope Halloway and her family. Hope is another little miracle that had Neuroblastoma and is CANCER FREE. We hope to hang out with the Halloway clan as well. We know these families have lots to teach us. Lessons their children have taught them and continue to teach us all. Lessons of what life is really about. Thanks be to God for the lessons we have already learned. You have know idea what life is really about until you are faced with the possibility of your child's death. Ok, now enough about that. We all had a ball and sweet Tuesday even stood on her own two legs and did a little dancing. Could she be any cuter?

How is Tuesday doing you ask?


Life has been so fine since coming home. Tuesday is feeling great, or at least deserves a Daytime Emmy for acting like she feels great. Her past cycle of chemotherapy is notorious for being particularly pukey. Not only did Tuesday not puke, but she managed to eat thru the entire course. Quite a feat for someone who yanked her own NG tube just a couple weeks ago. Ok, so she's eating like a toddler but, um, she IS a toddler so we are cutting her some slack. We have her on an organic diet (always did) with a smattering of McDonald's (gasp!) french fries.

It's been one big love fest around here since coming home. It feels so good to be back together. The girls have slipped right back in to twin-ness and Piper is proving to be quite the little mother hen. She makes sure Tuesday has every creature comfort she may need. Keeping her in Nuk's and blankies and snacks. Tuesday on the other hand spends most of her day trying to get a hold of Piper's new shoes. This is where the love ends. "MINE! MINE! MIIIIIINEEEEE!!!!!!", "NO! MINE SHOES!"
Spencer and Axel are fantastic big brothers and huge helps. And 5. And 7. And boys. Need I say more?
So where do we go from here?

Tuesday goes back in to Children's on Sept 29th for her 4th (of 6) round of chemo. If all goes well, we will be in-patient for 4 days. Aunt SuSu will be flying in from Atlanta to help out at home. Still taking things one day at a time. We remain full of hope. We remain ever thankful to a Loving God. We remain, more than ever, so proud to be Tuesday's mom and dad.

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